Childhood Cancer Survivors : A Practical Guide to Your Future

More than 270,000 children, teens, and adults in the Untied States are survivors of childhood cancer. The surgery, radiation, chemotherapy, and stem cell transplants used to cure children can affect growing bodies and developing minds. If survivors know of these potential problems, they can take steps to identify, cope with, or treat them early if they do develop.

The second edition of Childhood Cancer Survivors charts the territory for survivors by providing state-of-the-art information about:

• Medical late effects from treatment
• Emotional aspects of surviving cancer
• Schedules for follow-up care
• Challenges in the heathcare system
• Lifestyle choices to maximize health
• Discrimination in employment of insurance

Authors Keene, Hobbie, and Ruccione are experts in the field of childhood cancer. They have written, spoken, and advocated about all aspects of survivorship. Importantly, they have also talked to hundreds of survivors, with a wide range of issues and triumphs, and have included many of their stories.

Woven throughout the text are stories from more than 100 survivors and parents. Authors Nancy Keene, Wendy Hobbie, and Kathy Ruccione are experts in the field of childhood cancer. Keene is the mother of a survivor of childhood leukemia and the author of several books including Childhood Leukemia, Childhood Cancer, Educating the Child with Cancer, and Chemo, Craziness & Comfort. Hobbie is coordinator of the Long-Term Follow-Up Clinic at the Children's Hospital of Philadelphia. Ruccione is Co-Director of the HOPE (Hematology-Oncology Psychosocial and Education) Program in the Childrens Center for Cancer and Blood Diseases at Childrens Hospital Los Angeles.

Nancy Keene has written or co-authored five health books for families. She is co-creator of the Patient-Centered Guides series and Editor of pediatric titles. Nancy is a tireless advocate for childrens health issues, including pediatric clinical trials, childhood cancer, late effects of childhood cancer treatments, pediatric pain relief, and emotional support for families. She frequently speaks for professional and parent groups and works on/with national pediatric advocacy organizations and committees.

Wendy Hobbie is one the editors and chapter authors of Survivors of Childhood Cancer: Assessment and Management. She has published numerous articles in peer reviewed journals on topics such as the late effects of treatment of childhood cancer, the role of the nurse practitioner in follow-up care, and risk taking and decision making of survivors of childhood cancer. She is frequently invited to lecture health care professionals, cancer survivors and their families on a variety of cancer survivorship issues. Wendy Hobbie is the Associate Director of the Pediatric Oncology Nurse Practitioner Program at the University of Pennsylvania and the Coordinator of the Follow-Up Program at Children's Hospital of Philadelphia. During the past 15 years, Wendy has devoted her professional life to the follow-up and treatment of survivors of childhood cancer and their families. Through education, Wendy has empowered survivors with the knowledge to advocate for themselves in the health care system and society. Wendy lives with her husband and two children, Jonathan and Sarah, in Philadelphia.

Kathy Ruccione is the Nursing Administrator in the Childrens Center for Cancer and Blood Diseases at Childrens Hospital Los Angeles. Her particular interests are in three areas: preparing patients and families to be informed participants in their care; the long-term follow-up of childhood cancer survivors; and the epidemiology and genetics of childhood cancer. She has published extensively and is frequently invited to speak on these topics. Kathy has lived in Southern California most of her life. She is the mother of one child, Daniel, who is now 12 years old. Living with Daniel, who is profoundly deaf, has brought many new challenges and opened new worlds. Her personal experience as a mother of a child with a disability has enriched her perspective and deepened her commitment to finding ways to help children and their families survive and transcend the experience with cancer.