Face to Face with Strabismus is an exploration of this poorly understood eye condition. Strabismus (which means to have misaligned eyes) is often dismissed - even within the medical community - as a cosmetic problem which has resulted in inadequate support and unnecessary suffering for patients. Some patients have been incorrectly informed that the condition is incurable.
Through the patient interviews and photographic portraits, Lucia and Francesca have offered insight into the lived experience of strabismus sufferers. Consultant Ophthalmologists, Dr Giovanni Battista Marcon (in Italy) and Mr Saurabh Jain (in the UK), experts in the treatment of strabismus, have shared their knowledge and observations whilst also examining the reasons why strabismus patients are not getting the support and care that they should.
The book also considers the topic of self-esteem and self-image, how some patients can suffer with poor self-image and ridicule in social situations because of their misaligned eyes. Psychologist and Lecturer, Dr Silvia Riva, has provided illuminating commentary through her study of the patient interviews and in her discussions with Francesca and Lucia on the impact of living with strabismus and the wider theme of what we see in the mirror when we are face to face with our own reflection.
Francesca Cesari, photographer, and Lucia Wilson, writer, are the co-creators of the Face to Face project. Lucia is a former strabismus patient.
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