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Sinopsis
Book by Cristy Balcells
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Reseña del editor
LIVING WELL WITH MITOCHONDRIAL DISEASE helps make sense of mitochondrial disease (Mito), an overwhelming and complex group of diagnoses that has grown exponentially in recent years. The most common metabolic disorders, thought to be more common than cystic fibrosis and broader-reaching than most genetic diseases, Mito can affect babies, children, and teens from birth or at any point during their development. Previously healthy adults, as well as adults with a history of unexplained fatigue, are increasingly receiving a Mito diagnosis. Some children with autism spectrurm disorders who have medical issues such as digestive difficulties and fatigue are also being identified as having a mitochondrial disorder. This guide – the first book about Mito written for patients and their families -- takes readers from understanding how the mitochondria work (they are the powerhouse of the cell, providing energy for the entire body), how people with mitochondrial defects are diagnosed and treated, to how to live well when you, your child, or someone you love is struggling with disabling symptoms. Topics include: The journey to diagnosis; the biochemistry of Mito; practical advice for the specific needs of children and adults; understanding and managing symptoms; where to find specialists and support; treatment approaches; autism and Mito. Writing from the perspective of both a parent and nurse, the author shows adult patients, parents, family members, and caregivers how to achieve the best quality of life possible. Readers will feel empowered as they come to understand the causes of Mito, learn to manage the symptoms, avoid emergencies, and make appropriate lifestyle choices.
Biografía del autor
Cristy Balcells R.N., M.S.N. s a nurse, mother of a child with mitochondrial disease, and tireless advocate for the patient community. She is executive director of MitoAction.org, a Boston-based organization that provides global quality of life initiatives focused on support, education, and advocacy. Cristy has a Master's in Nursing and Community Public Health from the University of Virginia, and has won awards for her innovative maternal-child health program, “BabySense”. Cristy lives with her husband and three children in Boston.
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- EditorialWoodbine House Inc.,U.S.
- Año de publicación2012
- ISBN 10 1606130145
- ISBN 13 9781606130148
- EncuadernaciónTapa blanda
- IdiomaInglés
- Número de páginas350
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Living Well With Mitochondrial Disease: A Handbook for Patients, Parents, and Families
Publicado por
Woodbine House, 2012
ISBN 10: 1606130145
ISBN 13: 9781606130148
Antiguo o usado
Tapa blanda
Librería: SecondSale, Montgomery, IL, Estados Unidos de America
Calificación del vendedor: 5 de 5 estrellas
Condición: Good. Item in good condition. Textbooks may not include supplemental items i.e. CDs, access codes etc. Nº de ref. del artículo: 00085978974
Cantidad disponible: 1 disponibles
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Living Well with Mitochondrial Disease: A Handbook for Patients, Parents, and Families
Publicado por
Woodbine House, 2012
ISBN 10: 1606130145
ISBN 13: 9781606130148
Antiguo o usado
Paperback
Librería: ThriftBooks-Atlanta, AUSTELL, GA, Estados Unidos de America
Calificación del vendedor: 5 de 5 estrellas
Paperback. Condición: Very Good. No Jacket. Former library book; May have limited writing in cover pages. Pages are unmarked. ~ ThriftBooks: Read More, Spend Less 1.26. Nº de ref. del artículo: G1606130145I4N10
Cantidad disponible: 1 disponibles
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Living Well with Mitochondrial Disease: A Handbook for Patients, Parents, and Families
Librería: Grumpys Fine Books, Tijeras, NM, Estados Unidos de America
Calificación del vendedor: 5 de 5 estrellas
Paperback. Condición: new. Prompt service guaranteed. Nº de ref. del artículo: Clean1606130145
Cantidad disponible: 1 disponibles
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Living Well With Mitochondrial Disease: A Handbook for Patients, Parents, and Families
Publicado por
Woodbine House 2/27/12, 2012
ISBN 10: 1606130145
ISBN 13: 9781606130148
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Soft cover
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Librería: PorterMonkey Books, Chapel Hill, NC, Estados Unidos de America
Calificación del vendedor: 5 de 5 estrellas
Soft cover. Condición: Good. 1st Edition. Unmarked. Interior text does not appear to contain highlighting, underlining or writing. Cover shows edge and shelf wear from use but is in overall good/solid condition. Binding solid. 2012. Woodbine house. May not include all supplements such as CDs, working access codes or DVDs. A book that is currently OOP / NP (Out-Of-Print edition / No Longer in Print ), uncommon, a first edition or hard to find book. Thank you for shopping with us! 45. Nº de ref. del artículo: C2634gtx031323e2
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