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Reseña del editor
The story begins on St. Stephen's Day, 2010, in St. John's, Newfoundland, when the author gives birth to a baby girl named Sadie Jane who has a shock of snow-white hair. News of the child's icy locks travels across the hospital, and physicians and nurses from all wards visit the unusually beautiful newborn as she lies sleeping in her plastic bassinet. The maternity-floor janitor, however, feels something is amiss. Her eyes wide, incredulous and panicky, Emily asks, "Is she an albino?" The idea is immediately dismissed, but after three months of medical testing, Sadie is diagnosed with albinism, a rare genetic condition where pigment fails to form in the skin, hair and eyes. She is visually impaired and faces a lifetime indoors. She will always have the otherworldly appearance that drew the awestruck hospital staff to her side. A journalist and folklore scholar accustomed to processing the world through other people's stories, Emily is drawn to understanding her child's difference by researching the cultural beliefs associated with albinism worldwide. What she finds on her journey vacillates between beauty and darkness. She discovers that Noah's birth story is believed to be the first record of a baby born with albinism, and that the Kuna people in Panama revere members of their society with albinism, seeing them as defenders of the moon in the night sky. She attends a gathering of people with albinism in St. Louis and interviews geneticists, social scientists, novelists and folklorists in Canada, England and the US. But when she uncovers information about gruesome attacks on people with albinism in Tanzania, rooted in black magic, she feels compelled to travel to East Africa, her sun-shy toddler in tow, in an effort to understand these human-rights violations. While navigating new territory as a first-time parent of a child with a disability, Emily embarks on a three-year journey across North America and Africa to discover how we explain human differences, not through scientific facts or statistics but through a system of cultural beliefs. Part parenting memoir, part cultural critique and part travelogue, Beyond the Pale, as the title suggests, takes the reader into dark and unknown territory in the search for enlightenment.
Biografía del autor
Emily Urquhart, a writer and folklorist, grew up in a small town in southwestern Ontario and has lived in Nice, Dublin, Edinburgh, Toronto, Vancouver, and Kyiv, among other places. She has a doctorate in folklore from Memorial University of Newfoundland and undergraduate degrees in journalism and art history. Her work has appeared in numerous publications, including Reader's Digest, Flare, and The Walrus, and she won a National Magazine Award in 2014. Emily Urquhart lives in Victoria, British Columbia, with her family.
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- EditorialHarper
- Año de publicación2015
- ISBN 10 0062389165
- ISBN 13 9780062389169
- EncuadernaciónTapa dura
- Número de páginas288
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Beyond the Pale : Folklore, Family and the Mystery of Our Hidden Genes
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HarperCollins Publishers, 2015
ISBN 10: 0062389165
ISBN 13: 9780062389169
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Beyond the Pale : Folklore, Family and the Mystery of Our Hidden Genes
Publicado por
HarperCollins Publishers, 2015
ISBN 10: 0062389165
ISBN 13: 9780062389169
Antiguo o usado
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Librería: Better World Books, Mishawaka, IN, Estados Unidos de America
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Condición: USED_GOOD. Former library book; may include library markings. Used book that is in clean, average condition without any missing pages. Nº de ref. del artículo: 6152662-6
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Beyond the Pale : Folklore, Family and the Mystery of Our Hidden Genes
Publicado por
HarperCollins Publishers, 2015
ISBN 10: 0062389165
ISBN 13: 9780062389169
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Tapa dura
Librería: Better World Books, Mishawaka, IN, Estados Unidos de America
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Condición: USED_GOOD. SHIPS FROM USA. Used books have different signs of use and do not include supplemental materials such as CDs, Dvds, Access Codes, charts or any other extra material. All used books might have various degrees of writing, highliting and wear and tear and possibly be an ex-library with the usual stickers and stamps. Dust Jackets are not guaranteed and when still present, they will have various degrees of tear and damage. All images are Stock Photos, not of the actual item. book. Nº de ref. del artículo: 12-0062389165-G
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Beyond the Pale
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Hardcover. Condición: USED_GOOD. Estado de la sobrecubierta: Good. The story begins on St. Stephen's Day, 2010, in St. John's, Newfoundland, when the author gives birth to a baby girl named Sadie Jane who has a shock of snow-white hair. News of the child's icy locks travels across the hospital, and physicians and nurses from all wards visit the unusually beautiful newborn as she lies sleeping in her plastic bassinet. The maternity-floor janitor, however, feels something is amiss. Her eyes wide, incredulous and panicky, Emily asks, "Is she an albino?" The idea is immediately dismissed, but after three months of medical testing, Sadie is diagnosed with albinism, a rare genetic condition where pigment fails to form in the skin, hair and eyes. She is visually impaired and faces a lifetime indoors. She will always have the otherworldly appearance that drew the awestruck hospital staff to her side. A journalist and folklore scholar accustomed to processing the world through other people's stories, Emily is drawn to understanding her child's difference by researching the cultural beliefs associated with albinism worldwide. What she finds on her journey vacillates between beauty and darkness. She discovers that Noah's birth story is believed to be the first record of a baby born with albinism, and that the Kuna people in Panama revere members of their society with albinism, seeing them as defenders of the moon in the night sky. She attends a gathering of people with albinism in St. Louis and interviews geneticists, social scientists, novelists and folklorists in Canada, England and the US. But when she uncovers information about gruesome attacks on people with albinism in Tanzania, rooted in black magic, she feels compelled to travel to East Africa, her sun-shy toddler in tow, in an effort to understand these human-rights violations. While navigating new territory as a first-time parent of a child with a disability, Emily embarks on a three-year journey across North America and Africa to discover how we explain human differences, not through scientific facts or statistics but through a system of cultural beliefs. Part parenting memoir, part cultural critique and part travelogue, Beyond the Pale, as the title suggests, takes the reader into dark and unknown territory in the search for enlightenment. Former library book. Mylar protector included. Binding is moderately loose. Moderate shelf wear. Please note the image in this listing is a stock photo and may not match the covers of the actual item. Ex-Library. Nº de ref. del artículo: 123627812
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Beyond the Pale: Folklore, Family and the Mystery of Our Hidden Genes
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hardcover. Condición: NEW. May have light shelf wear due to warehouse storage and handling. Nº de ref. del artículo: 230101009
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