Lighting Up a Hidden World: CFS and ME

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9781460280508: Lighting Up a Hidden World: CFS and ME

The onset can be fast and shocking or slow and insidious. It can happen to anyone at any age. A flu, a vaccination, or an infection can be the innocent beginnings to the potentially life-long and disabling illness called myalgic encephalomyelitis (ME), which is more commonly known as chronic fatigue syndrome (CFS) or ME/CFS in North America. 

In the mid 1980s, the U.S. Centers for Disease Control (CDC) was called in by concerned doctors who were witnessing an influx of patients with a mysterious illness. Eventually the CDC labeled the condition “chronic fatigue syndrome” which turned out to be very misleading. Decades later, in 2016, health agencies are finally beginning to agree with international experts that ME/CFS is a serious, chronic, multi-system illness.

Through artwork, poetry, story-telling, and meticulous research, Lighting Up a Hidden World: CFS and ME takes readers into the fascinating, yet frightening, landscape of ME/CFS. Author Valerie Free shares her personal experiences and delivers illuminating first-hand perspectives from patients, caregivers, journalists, and medical professionals from within the global community in short easy-to-read segments. These stories reveal the disgrace, controversy, and tragedy of worldwide neglect by political and health care systems, leaving ME/CFS research underfunded and millions of people marginalized, sick, and socially unsupported.

Lighting Up a Hidden World: CFS and ME advocates for those too ill to speak out, abounds with patient resources, and offers realistic hope for the future. People living with this illness, along with their family and friends, will find compassion and camaraderie in its pages. This book reaches beyond the ME/CFS community exposing the themes of human suffering, resilience, and the need for social change.

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About the Author:

In 1990, Valerie Free was a happy, vibrant thirty-year-old woman - a court stenographer, a loving wife, and the mother of a precious baby girl. In July of that year, she came down with a sudden, flu-like illness, and after months of unrelenting and bizarre symptoms, was diagnosed with chronic fatigue syndrome (CFS), later to be understood as myalgic encephalomyelitis (ME) or ME/CFS. Valerie had entered a world that she could never have imagined, a world she still lives in to this day. Despite the challenges posed by her health, she went on to search for answers. Lighting Up a Hidden World: CFS and ME is the result, involving decades of research and outreach to the chronic illness community. Her natural curiosity, her love of people - as well as her interest in storytelling for social change - have allowed her to write this in-depth investigation into this mysterious illness. Valerie resides on an acreage with her family in Alberta, Canada.

Review:

Foreword Clarion Review, November 2016This book is a remarkable contribution to the literature concerning chronic fatigue syndrome.In 1990, at the age of thirty, Valerie Free suddenly came down with a flu-like illness. Several months later, she was diagnosed with chronic fatigue syndrome, or CFS. Lighting Up a Hidden World: CFS and ME blends poetry, artwork, personal experience, and science to shine light on a baffling, life-draining, isolating chronic illness that, despite its devastating effect on millions of people worldwide, receives little attention. To date, there is no standard approved treatment and no cure.The book is full of information about the condition also known as myalgic encephalomyelitis (ME), or, combined, as ME/CFS. ME means an inflammation of the brain and spinal cord accompanied by muscle pain.ME/CFS, it reveals, often begins with what appears to be a cold or the flu, and progresses to leave its victims housebound and often confined to bed with symptoms that include sleep dysfunction, muscle pain and weakness, numbness, fatigue, central nervous system problems, and neurological and cognitive dysfunction, all of which can lead to depression and sometimes suicidal ideation.Despite the fact that ME/CFS has manifested across the world for decades, governmental health agencies have devoted very little effort to research, care, or prevention. The author notes, with justifiable anger, that at least one million Americans, more than 400,000 Canadians, and millions more people around the world still suffer withoutmedical help. Anyone, regardless of race, age, or socioeconomic status, can be afflicted with this aggressive, life threatening, and often progressive illness, which has derisively been called a "mental problem" because mainstream lab reports often come back without revealing anything amiss, and symptoms can come and go, giving the impression that sufferers are "faking it."...Free's writing is eloquent, and her voice is both intimate and powerful. The interior layout and design facilitate reading pleasure and comprehension, and the book is enhanced by whimsical, touching black-and-white illustrations that often bring a smile."Through my own story, and the dozens of others featured in these pages, my hope is to generate greater awareness of ME/CFS and accelerate progress toward better care, a cure, and prevention," she writes. "I want to reach beyond the ME/CFS community to a new audience who will see our hidden world maybe for the first time."Valerie Free's Lighting Up a Hidden World is a remarkable contribution. In it, she illuminates a hidden world, inspires passion and hope, and issues a powerful call for action on behalf of those whose suffering has too long been ignored.KRISTINE MORRISForeword Clarion Review

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Valerie Free
Editorial: Friesenpress, United States (2016)
ISBN 10: 1460280504 ISBN 13: 9781460280508
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Descripción Friesenpress, United States, 2016. Paperback. Estado de conservación: New. Language: English . Brand New Book ***** Print on Demand *****.The onset can be fast and shocking or slow and insidious. It can happen to anyone at any age. A flu, a vaccination, or an infection can be the innocent beginnings to the potentially life-long and disabling illness called myalgic encephalomyelitis (ME), which is more commonly known as chronic fatigue syndrome (CFS) or ME/CFS in North America. In the mid 1980s, the U.S. Centers for Disease Control (CDC) was called in by concerned doctors who were witnessing an influx of patients with a mysterious illness. Eventually the CDC labeled the condition chronic fatigue syndrome which turned out to be very misleading. Decades later, in 2016, health agencies are finally beginning to agree with international experts that ME/CFS is a serious, chronic, multi-system illness. Through artwork, poetry, story-telling, and meticulous research, Lighting Up a Hidden World: CFS and ME takes readers into the fascinating, yet frightening, landscape of ME/CFS. Author Valerie Free shares her personal experiences and delivers illuminating first-hand perspectives from patients, caregivers, journalists, and medical professionals from within the global community in short easy-to-read segments. These stories reveal the disgrace, controversy, and tragedy of worldwide neglect by political and health care systems, leaving ME/CFS research underfunded and millions of people marginalized, sick, and socially unsupported. Lighting Up a Hidden World: CFS and ME advocates for those too ill to speak out, abounds with patient resources, and offers realistic hope for the future. People living with this illness, along with their family and friends, will find compassion and camaraderie in its pages. This book reaches beyond the ME/CFS community exposing the themes of human suffering, resilience, and the need for social change. Nº de ref. de la librería AAV9781460280508

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Descripción Friesenpress, United States, 2016. Paperback. Estado de conservación: New. Language: English . Brand New Book ***** Print on Demand *****. The onset can be fast and shocking or slow and insidious. It can happen to anyone at any age. A flu, a vaccination, or an infection can be the innocent beginnings to the potentially life-long and disabling illness called myalgic encephalomyelitis (ME), which is more commonly known as chronic fatigue syndrome (CFS) or ME/CFS in North America. In the mid 1980s, the U.S. Centers for Disease Control (CDC) was called in by concerned doctors who were witnessing an influx of patients with a mysterious illness. Eventually the CDC labeled the condition chronic fatigue syndrome which turned out to be very misleading. Decades later, in 2016, health agencies are finally beginning to agree with international experts that ME/CFS is a serious, chronic, multi-system illness. Through artwork, poetry, story-telling, and meticulous research, Lighting Up a Hidden World: CFS and ME takes readers into the fascinating, yet frightening, landscape of ME/CFS. Author Valerie Free shares her personal experiences and delivers illuminating first-hand perspectives from patients, caregivers, journalists, and medical professionals from within the global community in short easy-to-read segments. These stories reveal the disgrace, controversy, and tragedy of worldwide neglect by political and health care systems, leaving ME/CFS research underfunded and millions of people marginalized, sick, and socially unsupported. Lighting Up a Hidden World: CFS and ME advocates for those too ill to speak out, abounds with patient resources, and offers realistic hope for the future. People living with this illness, along with their family and friends, will find compassion and camaraderie in its pages. This book reaches beyond the ME/CFS community exposing the themes of human suffering, resilience, and the need for social change. Nº de ref. de la librería AAV9781460280508

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Descripción Friesenpress, United States, 2016. Paperback. Estado de conservación: New. Language: English . This book usually ship within 10-15 business days and we will endeavor to dispatch orders quicker than this where possible. Brand New Book. The onset can be fast and shocking or slow and insidious. It can happen to anyone at any age. A flu, a vaccination, or an infection can be the innocent beginnings to the potentially life-long and disabling illness called myalgic encephalomyelitis (ME), which is more commonly known as chronic fatigue syndrome (CFS) or ME/CFS in North America. In the mid 1980s, the U.S. Centers for Disease Control (CDC) was called in by concerned doctors who were witnessing an influx of patients with a mysterious illness. Eventually the CDC labeled the condition chronic fatigue syndrome which turned out to be very misleading. Decades later, in 2016, health agencies are finally beginning to agree with international experts that ME/CFS is a serious, chronic, multi-system illness. Through artwork, poetry, story-telling, and meticulous research, Lighting Up a Hidden World: CFS and ME takes readers into the fascinating, yet frightening, landscape of ME/CFS. Author Valerie Free shares her personal experiences and delivers illuminating first-hand perspectives from patients, caregivers, journalists, and medical professionals from within the global community in short easy-to-read segments. These stories reveal the disgrace, controversy, and tragedy of worldwide neglect by political and health care systems, leaving ME/CFS research underfunded and millions of people marginalized, sick, and socially unsupported. Lighting Up a Hidden World: CFS and ME advocates for those too ill to speak out, abounds with patient resources, and offers realistic hope for the future. People living with this illness, along with their family and friends, will find compassion and camaraderie in its pages. This book reaches beyond the ME/CFS community exposing the themes of human suffering, resilience, and the need for social change. Nº de ref. de la librería LIE9781460280508

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